In a bid to improve the quality of life of people with Sickle Cell Disorder (SCD), the coalition of SCD Non-Governmental Organizations (NGOs) has called on the government and private sector to pay more attention and fund projects on the disease.
Speaking at the Charity Walk’ sponsored by Fidelity Bank, Chairperson, Coalition of SCD NGOs, Ms Toyin Adesola said the goal of the coalition was to improve the quality of life of people with SCD in Nigeria and increase their average life expectancy from less than 20 years to what is obtain among affected persons in the United State and even surpass it.
This, according to Adesola, can only happen if all hands are on deck, with governments working in concert alongside the private sector, NGOs and communities across the country.
“We are bringing together people from all works of life to advocate the recognition of the disorder as a major public health problem in Nigeria, where 1-in-4 people are healthy carriers of the sickle cell gene and over 150,000 children are born annually with symptomatic sickle cell anemia.”
The national director/CEO, Sickle Cell Foundation of Nigeria, Dr. Annette Akinsete, said the walk is to create awareness to the public and also to get active participation from the government and private organisations.
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